Abby’s Joy
A foundation formed to help families find support and information while walking the path of Diffuse Intrinsic Pontine Glioma (DIPG)
What Is DIPG?
Diffuse Intrinsic Pontine Glioma (DIPG) is a brain tumor found in a part of the brain stem called the pons. The pons controls essential bodily functions, including heartbeat, breathing, swallowing, eye movement, eyesight, and balance.
DIPG affects children almost exclusively
Approximately 200-400 children in the United States alone are diagnosed with DIPG each year. These children are typically between the ages of 4 and 11. DIPG accounts for roughly 10-15% of all brain tumors in children. DIPG is an aggressive tumor that interferes with all bodily functions, depriving a child of the ability to move, communicate, and even to eat and drink.
As a DIPG tumor begins to grow, it puts pressure on the nerves that control the essential bodily functions regulated by the pons. Children with DIPG commonly experience double vision, reduced eye movement, nausea and vomiting, facial weakness or asymmetry, and arm and leg weakness. They also have problems with walking, coordination, speech, chewing, and swallowing. As the tumor progresses, it also interferes with breathing and heartbeat, which ultimately results in the child’s death.
Donations
Donations are an important source of funding for any nonprofit organization, especially those regarding DIPG and its affect on children and families. All contributions to Abby’s Joy are used to directly support these families in the many costs incurred upon them. We would be overjoyed if you would consider donating to Abby’s Joy today, for which we have provided detailed information on the various methods to do so in the link below!
Volunteering
Volunteering at Abby’s Joy is an important means to give back to the community and support a great cause. We rely on volunteers to help us carry out our mission and achieve our goals. By volunteering your time and skills, you can make a significant contribution that creates a positive impact on those affected by a DIPG diagnosis.
In addition to the satisfaction of helping others, volunteering at Abby’s Joy also provides personal benefits. It can be a great way to meet new people, learn new skills, and gain valuable experience. while making a positive difference in the world. For more information on events and volunteering, please see the associate webpage below!
Go Gold This September
September is Pediatric Cancer Awareness Month. Join us this September to help our community Go Gold.
Diagnosed with DIPG?
We understand this is a very difficult time in your life. We want to provide you with all the information that can help you or a loved one prolong their quality of life. Always remember that you are not alone, and there’s a community that cares.
Fill out the Grant Application below for Financial Assistance, or see our DIPG Locator for more resources.